Applications open for BIE - Cosmos Prize Expo 2020 Dubai, rewarding not-for-profit projects that respond to Expo’s theme Applications are now open for the Expo 2020 Dubai edition of the BIE-Cosmos Prize, open to citizen projects that respond to the Expo theme...
His Highness Sheikh Theyab bin Mohamed bin Zayed Al Nahyan, Chairman of the Abu Dhabi Crown Prince’s Court and Chairman of Etihad Rail, has inaugurated track laying at the railhead in Saih Shuaib, in the direction of Abu Dhabi and Dubai. H.H. Sheikh Theyab reviewed...
Patrizia Marin - Ritossa Dubai: Congratulations Gustavo Montero, MASTERING THE BUSINESS OF BLOCKCHAIN was a great success, a fully booked event. Please share with us some inside. Why did you decide to create this conference? Blockchain Technology is fantastic and will...
The Dubai Multi Commodities Centre has set up a new space that will house companies developing crypto and blockchain technology. The development will house all types and sizes of crypto businesses, including companies developing blockchain-enabled trading platforms....
Songwriter penned a song about a young boy with a rare condition
Ron Mozart, from West Heslerton, was inspired by five-year-old Sam Ray, who was diagnosed with Angelman Syndrome in April 2017.
Angelman Syndrome is a rare, genetic and neurological disorder, which occurs in one in 20,000 people. Sam has cognitive impairment, developmental delays and low muscle tone, among other things, however, he communicates well in other ways.
“Sam is the son of a former colleague of mine, Miss Emily Ray, who taught French in Fujairah, in United Arab Emirates, back in 2013, when I was at the same school.
“The family recently relocated to Dubai and Sam’s smile even helped light up the tallest building in the world, Burj Khalifa, in February 2020.
“Sam’s life expectancy is normal, meaning that he may live to the age of 80 years old.
“He needs care 24 hours per day, seven days per week, and will need this care for the rest of his life.
“Angelman Syndrome is not very well-known, but it should be.”
Ron, a former head teacher, has been writing, recording and performing folk ballads, accompanied by a 12-string guitar since 1971. After retiring as a head teacher three years ago, Ron returned to his passion for music and fundraising for charity.
“I wanted to write and record this song for Sam and all those other people and their families who are affected by Angelman Syndrome,” said Ron. “It’s important to draw attention to it and to hopefully raise some money for the UK’s Angelman Charity. We really hope you will smile with Sam.”